Perspective & Vertical Talus

Perspective. If I had to sum up my journey with TinySuperheroes in a few words, perspective would be at the top of the list.

On February 24, 2017 we welcomed our third son into our family, Super Sheldon. It’s crazy how instantaneously it seemed impossible to imagine life without him and terrifying to imagine life with 3 boys! (Just being real here…three feels a little overwhelming…)

When Super Sheldon was born, his feet looked funky. It was clear that his feet had been stuck in a strange position while he was on the inside (I’m pretty sure right under my ribs) but less clear if something more substantial was wrong.



At 2 weeks old, an X-Ray revealed that Sheldon has bilateral congenital vertical talus. I’d definitely never heard of it and am still not positive how to pronounce it. As I understand it, it is a deformity of the foot that causes the talus bone (the bone that connects the lower leg to the foot) to point the wrong direction (it typically points towards the toe, and in these cases points vertically toward the ground).

Vertical Talus is completely fixable and his early diagnosis will only help. It will involve a bit of chaos (as I feel it) in the coming months including many sets of full leg casts, 2 surgeries and a set of awesome boots that are connected by a bar. (Treatment is similar to club foot.)

While I certainly have feelings of angst, hesitation and fear, those feelings are no doubt trumped by the feeling of gratitude – something that the TinySuperheroes community alone has taught me.

Before TinySuperheroes, months of casts and surgery on my sweet new baby would have felt paralyzing. I would have wondered what we did wrong…worried about what this could mean for his future…fear the stigma of having a child born with deformed feet would carry…

But with TinySuperheroes, I see how blessed we are by this diagnosis.

Blessed because it is something they can correct.

Blessed because it shouldn’t affect his gross motor development.

Blessed because they caught it early.

Blessed because the doctor who developed the treatment for Vertical Talus, is in our city!

Blessed because we have health insurance that will cover this.

Blessed that we have family around to support us.

Blessed because we have Sheldon, who is just perfect.

Blessed because TinySuperheroes has taught us that differences are super powers!

Because of TinySuperheroes, I don’t want to hide his casts. I want to strap on his cape and let Sheldon be an ambassador for our TinySuperheroes who overcome things like this and SO MUCH MORE. I want to use this opportunity to bring awareness and encourage kindness.

So tomorrow we go to St. Louis Children’s Hospital to see Dr. Matthew Dobbs and Sheldon will get his first set of casts. Tonight, I just want to say thank you. Thank you for teaching me how to see the joy in all things, at all times. You’ve truly changed me and I’m forever grateful.

We’ll keep you posted, but Super Sheldon is ready!

PS – If any of our TinySuperheroes have had full leg casts…how do you prevent the inevitable disaster of a terrible diaper!??!??!?!?! (Seriously…I need to know!)

 

5 replies
  1. Jamie says:

    Love, love, love! Praying for sweet baby Super Sheldon that all goes well, according to plan, and for you and your family for wisdom and strength. Thanks for your encouraging words and your incredibly positive outlook!

    Reply
  2. Jennifer O'Daniel says:

    Cover the edges of the cast with waterproof tape. Also maxi pads placed over the edges in the diaper area. That way if there is a diaper explosion the tape and pads will catch the mess. I used to work in a children’s hospital:)

    Reply
  3. Laura says:

    Well, Super Enzo was born with clubfeet and started casting at day 10 of his life. He only needed a cast and surgery on one side, the other side was treated with physiotherapy. We only had a diaper incident on the first day of his first cast. We removed it (he had this cast that we could remove at home, something like a really sturdy tape) bathed him and went back for a new cast the next day. Just do not use washable diapers; that was our mistake I guess. And, get used to the noise! Tapping the floor is so much more fun with a cast or a brace!

    Reply
  4. Bamboo Crook says:

    My daughter was born with congenital hip dysplasia. It has a long complicated name but I can’t pronounce or spelling so I call it what I understand it to be. She had surgery as an infant and wore a spica cast for four months and then slept in a splint until she was 4. Today she is almost 17 and you’d never know that she has a congenital birth defect. If I could add a picture of her here I would! Prayers for complete restoration of your tiny super hero!

    Reply

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